sbdsa.org

Advances in Treatment of Children with Down Syndrome

Bronwyn — Sun, 20 May 2012 02:58:58 +0000

Join Nina Yoshpe, M.D. and a team of multi-disciplinary specialists from Miller Children’s Hospital Long Beach for a special presentation on the advances in treatment of children with Down Syndrome.

Down+Syndrome+Event+2012

Still looking for a summer camp?

Karen — Thu, 17 May 2012 16:12:51 +0000

If you are still looking for a summer camp opportunity check out the Friendship Circle’s website. They have lots of affordable camp offerings. http://gotfriends.com/summer-programs.aspx

DSALA Basketball in the South Bay

Karen — Fri, 11 May 2012 04:17:17 +0000

All Ages!

DSALA Sports + Fitness Basketball Program

Saturdays 9am – 12pm June 2 – July 14, 2012

9:00 – 9:45 Parent & Me Ball Play

10:00 – 10:45 Beginning Skills /5-12 yrs old

11:00 – 11:45 Intermediate Skills / 10 and older

El Segundo High School, 640 Main St. El Segundo, Ca 90245

You may register your child the first day of class! Cost $30

Camp Escapades 2012 registration

Karen — Tue, 01 May 2012 17:29:02 +0000

From PTN:

Camp Escapades 2012 registration for campers will open on Wednesday, May 2, 2012 at Noon! Camp Escapades 2012 will run for two weeks, August 6 – 17, 2012, Monday through Friday from 9:30am to 3:30pm. Camp Escapades 2012 will take place at Rolling Hills Country Day School located at 26444 Crenshaw Boulevard in Rolling Hills Estates.
The cost for Camp Escapades 2012 is $295 per camper, per week. Due to budget cuts, we are unable to offer scholarships for Camp this year. We have done our best to keep the cost of Camp as low as possible.

http://www.pediatrictherapynetwork.org/campescapades/campers.cfm

Summer Camp Opportunities

Karen — Thu, 19 Apr 2012 17:11:54 +0000

Looking for inclusive summer camps in your community for your child with special needs? Resources in Autism Education, Inc.’s ”myCoach” program gives children with special needs the opportunity to participate in any summer camp of your choice. Your child will be matched with a one-on-one trained behavioral coach. With his/her coach, your child will have the support needed to participate actively and meaningfully at camp alongside typical peers. We want all children to have fun and make new friends!

Call Judy Chen, Resources in Autism Education, Inc. 310.320.5856
judy@AutismEd.com
facebook.com/AutismEd

Why So Many Babies Are Still Being Born With Down Syndrome

Bronwyn — Tue, 03 Apr 2012 21:12:24 +0000

As prenatal tests improve, more and more women are finding out if their fetus has an extra chromosome, but they’re still carrying to term.

An interesting article in The Atlantic.

~ Bronwyn

Celiac Disease and Gluten sensitivity

Karen — Thu, 22 Mar 2012 16:33:35 +0000

I’ve been doing some research on gluten since I put Magnus on a gluten free diet over a month ago. It isn’t easy to do but we are getting significant improvement in regularity and I have also noticed that he has more energy. I don’t know if he has ‘silent CD’ or he is just sensitive to wheat and I don’t know if I want to put him through a biopsy to find out. Our pediatrician did not suggest screening for Celiac until I brought it up when he was 6.

There is a lot of research both on higher prevelance of Celiac Disease in Down syndrome and on testing methods. It seems to be true that is is easy to get a false negative so if you see symptoms you need to test annually. Here are the research papers I have found so far:

http://www.ds-health.com/celiac.htm

http://www.celiac.com/categories/Celiac-Disease-Research%3A-Associated-Diseases-and-Disorders/Down-Syndrome-and-Celiac-Disease/

http://www.dsmig.org.uk/library/articles/coeliac-awareness-notes.pdf

http://www.down-syndrome.org/reports/107/

Films about Down Syndrome

Bronwyn — Mon, 19 Mar 2012 03:05:19 +0000

http://sproutflix.org/down_syndrome

Inclusion Binder

Bronwyn — Mon, 05 Mar 2012 17:07:42 +0000

I came across this in a yahoo group and thought it was a great idea:

Start printing anything and everything you learn about inclusion and start a notebook that you can loan to teachers over the next several years.

Section it:
1. Philosophy of inclusion ( include studies that support inclusion, how it benefits typical students without disabilities, etc)
2. How to include
3. Behavior
4. Modification ideas
5. Accommodation ideas
6. Tips for working with your specific child
7. Tips from prior teachers that you ask them to write each year for future teacher.

~ Bronwyn

Volunteers wanted!

Karen — Fri, 24 Feb 2012 18:42:42 +0000

We will be having our second fundraising yard sale Saturday 3rd at 8am -12. It will be at 443 W. 11th St, San Pedro CA 90731. Please email Karen Ford Cull or Charlene Fairchild Bu if you can volunteer for an hour, Saturday or Friday evening.