Welcome to Club 21 South Bay Community Group

We are excited to announce that South Bay Down Syndrome Association (SBDSA) is now part of Club 21 Learning and Resource Center.   We will be called “Club 21 South Bay Community Group (Club21SB)”.  This will be the first Club 21 Community Group established by Club 21 to serve families with Down syndrome in outlying areas! [MORE TAG]

What is Club 21? 

Please know as a Community Group we will continue to provide THE SAME events LOCALLY that we do now, including Playdates, Youth Group and Monday Night Meetings.  We will still have an annual Fiesta celebration. We hope to also continue the Self-Advocate programs started by Eden Rapp. This will all be funded by Club 21 giving us a budget for local community events.

We will now have a bigger voice and a larger organization to support our families and children with Down syndrome through an expanding network of educational and learning opportunities at Club 21.

As with SBDSA, Club 21 is a non-profit and will continue to be dependent on fundraising activities, generosity of donors and a pursuit of sponsorships and grants. The Club 21 South Bay Community group will be actively participating in raising funds for the organization so that we can grow and serve all communities with individuals with Down syndrome as well as our community here in the South Bay. The success of the above continues to be dependent upon our active membership, participation and enrollment in all Club 21 activities, both locally in the South Bay and in Pasadena.

We will still be a non-profit, however our 501(c)(3) Tax ID # has changed.  It is now 26-2887301.  Please make a note of this, when considering additional financial support for our organization.

This Community Group moves us from running a separate non-profit and toward a larger organization utilizing liaison support.  Rather than running our own affairs and wasting time holding board meetings and filing paper work, we will have two Co-Leaders who will volunteer for Club 21 to lead our Community Group.  Karen Cull and Roz Mooney have committed themselves to this task.  It is a two-year commitment and then someone else will have this wonderful opportunity.  The Community leaders will organize local playdates, Youth Group, Monday Night Meetings, and the Annual Fiesta.  Having been active in the organization since inception we are excited about this opportunity to continue the great work that has been done in the South Bay over the last 8 years, and we know that as we work together we can continue to benefit all of our local families and our children with Down syndrome.

You might have some questions? FAQ

World Down Syndrome Day

Tuesday 21 March 2017 marks the 12th anniversary of World Down Syndrome Day.

Each year the voice of people with Down syndrome, and those who live and work with them, grows louder.

Club21SB has produced a special WDSD 2017 newsletter for you to tell people about Down Syndrome and the importance of speaking up for Down syndrome.  This is designed to be shared by email or facebook or printed and used in schools or at community events. The flyer can be downloaded or shared here:.2017 C21_SB WDSD Newsletter.

Down Syndrome International encourages their friends all over the world to choose your own activities and events to help raise awareness of what Down syndrome is, what it means to have Down syndrome, and how people with Down syndrome play a vital role in our lives and communities.

Share your WDSD World Events before 21 March and your WDSD Stories after 21 March on our dedicated WDSD website in a single global meeting place.

#MyVoiceMyCommunity – Enabling people with Down syndrome to speak up, be heard and influence government policy and action, to be fully included in the community

In 2017, we will focus on enabling people with Down syndrome (and those who advocate for them) to speak up, be heard and influence government policy and action, to ensure that they can be included, on a full and equal basis with others, in all aspects of society.

We will be encouraging people with Down syndrome to say #MyVoiceMyCommunity and we will ask everyone to respond to our call by sharing and showing the world how people with Down syndrome participate in the community alongside everyone else. You can take part simply by sharing details of WDSD activities or by photos, messages, quotes or in any way you choose, using the hash tag #MyVoiceMyCommunity as well as #WDSD17.

WDSD Global Video Event and WDSD Conference will both explore this important area of focus.

Regional Center Concerns

SBDSA families have been working together with Autism Society of Los Angeles families to address our concerns about our local regional centers. Twenty seven family members showed up to Harbor Regional Center’s Board Meeting.  As their meetings legally must be held in public and must allow public comment we used our two minutes each to deliver this statement. [Read more…]

Is Special Education Working for You?

“Make Your Voices Heard!” – ASLA proudly presents… Community Town Halls on governmental agencies that provide education, support, and services to individuals with developmental disabilities in the Los Angeles area.

Join us for Community Town Hall #1: Special Education (ALL Disabilities)

Please RSVP Here.

** FREE EVENT & OPEN to THE PUBLIC**

Friday December 9, 2016 from 10:00 AM to 12:00 PM PST

Westside Regional Center – 3rd Floor Board Room
5901 Green Valley Circle
Culver City, CA

Responsabilidad de Centro Regional

Si usted solicita cualquier servicio a su Centro Regional y es rechazado (por cualquier motivo), usted puede presentar un carta de desacuerdo y explicando las razones.  Y si usted no recibe ninguna carta negándole el servicio, pongas en contacto con el Administrador de casos.  Y si no tiene respuesta del Administrador de casos, favor de presentar una queja Administrative (Queja 4731) junto con una carta de apelación si es que decide apelar.  Puede utilizar el formulario DDS o mandar una carta firmada.  Aquí tiene las instrucciones.

Envíe el formulario al Director de su Centro Regional.  Si no responden, puede enviar su formulario o carta DDS.  Como puede ver es un formulario muy simple, este no es lo mismo que una audiencia imparcial.  Esto es para quejarse sobre el proceso Administrativo, por ejemplo no tener una declaración annual de servicios o carta rechazando su solicitud o su copia de IFSP/IPP.  Direcciones que usted necesita, puede informarse en nuestro sitio Web.  Aquí tiene una quia útil para el proceso de IFSP (llamado IPP en otros Centros Regionales).

Patricia Del Monico, Executive Director
Harbor Regional Center
21231 Hawthorne Blvd.
Torrance, Ca. 90503

Westside Regional Center
Carmine Manicone
5901 Green Valley Circle # 320
Culver City, CA 90230

Dexter Henderson
South Central Los Angeles Regional Center
2500 S. Western Avenue
Los Angeles, CA 90018

DDS:
Appeals, Complaints & Projects Section
Department of Developmental Services
1600 9th Street, Room 340 (MS 3-9)
Sacramento, CA 95814

Regional Center Accountability

If you request a service from your Regional Center, ANY service and they say no (for any reason) please request a Letter of Denial, explaining those reasons. If you do not receive a denial letter, contact the case manager. If you still do not receive it, PLEASE file an administrative complaint (a “4731 complaint”) and a letter of appeal, if you choose to appeal.

You can use the DDS form or write a signed letter. Here is the form and the instructions.  You send the form to the Director of your RC. If they do not respond, please forward your letter/form to the DDS.

As you can see this is a very simple form. THIS IS NOT the same as a fair hearing. This is to complain about the admin process such as not getting an annual statement of services, letter of denial or a copy of your IFSP/IPP.

Here are the addresses that you need:
Patricia Del Monico, Executive Director
Harbor Regional Center
21231 Hawthorne Blvd.
Torrance, Ca. 90503

Westside Regional Center
Carmine Manicone
5901 Green Valley Circle # 320
Culver City, CA 90230

Dexter Henderson
South Central Los Angeles Regional Center
2500 S. Western Avenue
Los Angeles, CA 90018

DDS:
Appeals, Complaints & Projects Section
Department of Developmental Services
1600 9th Street, Room 340 (MS 3-9)
Sacramento, CA 95814

Here is a helpful guide to the IFSP process (Called IPP at other RC’s).

UpVoice

You are welcome to UpVoice where you’ll learn how to be an awesome self advocate. [Read more…]

3 B’s of Sexuality: Bodies, Boundaries & Behavior

If your child is approaching the teen years or already there, you are probably panicking about the whole puberty, dating, and sex thing. [Read more…]

Comedy…and magic too!

Comedy & Magic ClubPlease join us for an evening of laughter at the Comedy and Magic Club on June 9th in Hermosa Beach.  Jason Collings is the headliner. Two drink or dinner minimum.  Sorry kids, you must be 18 to participate.
The show starts at 8 pm; doors open for dinner and / or drinks at 6:30pm. Guests must be seated by 7:30.
$20 per ticket, all proceeds go to SBDSA when you buy your ticket from SBDSA.

Contact Nori     @SBDSA.org for tickets!!!

Celebrate World Down Syndrome Day with SBDSA

On World Down Syndrome Day, Monday 21 March 2016, join us to encourage children and adults with Down syndrome to say “My Friends, My Community” [Read more…]

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